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Centers for Disease Control - NCBDDD · Department of Health and Human Services

Long-term health outcomes of people living with spina bifida

Open

In short: Centers for Disease Control - NCBDDD expects to make 19 awards of $100,000 to $300,000. Open to many kinds of groups. See who can apply.

Key facts

Deadline
Due Oct 26, 2026 · 15 days left
The funder says: “Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.”
Award size
$100K – $300K
Total available
$3M · about 19 awards
Match ?
Not required · Work out your budget and match
Who can apply
State government, City or town government, Private college or university, Small business, County government, Nonprofit with 501(c)(3), School district, Special district (utility, fire, etc.), Nonprofit without 501(c)(3), Tribal government, Larger business, Public college or university
Where
Anywhere in the U.S., including Tennessee

Before you apply: federal grants require an active SAM.gov registration (Unique Entity ID) and a Grants.gov account. The deadline is in 15 days. If your registration isn't already active, it may not be ready in time, so check it today. Get-ready checklist

How this fits you

  • Available in Tipton County (nationwide program)
  • No match required
  • Past Tennessee awards on file: 3

Tell us who you are to see whether you're eligible.

About this grant

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

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Ask a partner for a letter

Your schedule, working back from the deadline

  1. Oct11
    Check that your SAM.gov registration is active (or start it now)
    Grants.gov: allow up to 10 business days for SAM registration, weeks or months if information isn't verified. It must be renewed every year. Grants.gov
  2. Oct5
    Ask partners for letters of support or commitment (already past: do it now)
    Suggested: partners need about three weeks to write and sign letters.
  3. Oct19
    Finish a complete draft for a final review
    Suggested: leave about a week for someone else to read the draft.
  4. Oct24
    Submit
    Grants.gov: submit at least 24–48 hours before the deadline: uploads fail, systems slow down, errors need fixing. Grants.gov blog
  5. Oct26
    Deadline
    From the funder.

Save this grant to put these dates in My grants and your private calendar.

Writing the need statement? Tipton County facts with citations.

Who in Tennessee has won this program

3 awards to Tennessee groups in 1 county since 2024 · 0 in Tipton County. Largest shown:

Past Tennessee winners
Past winnerWhereAmountFiscal year
Oak Ridge Associated Universities, IncorporatedOak Ridge$844K spent that year2025
Organization of Teratology Information Specialists, NfpBrentwood, Williamson County$733K spent that year2025
State of TennesseeNashville$695K spent that year2025

Source: Federal Audit Clearinghouse. Past awards show who this program funds. They don't guarantee future awards.

More from Centers for Disease Control - NCBDDD

About the federal program

Birth Defects and Developmental Disabilities - Prevention and Surveillance
Program number 93.073 (the federal Assistance Listing number) · U.S. Department of Health and Human Services, Centers for Disease Control and Prevention · Cooperative agreement (a grant with close agency involvement)

How applications are judged

In general, applications are reviewed on the basis of scientific/technical merit, with attention given to such matters as: (1) The degree to which the applicant satisfies the essential requirements and possesses other desired characteristics, such as depth, breadth, and merit of the overall application relative to the types of projects proposed; (2) clarity of purpose and overall qualifications, adequacy and appropriateness of personnel to accomplish proposed prevention research projects and demonstration projects, and the nation's health priorities and needs; (3) ability to generalize, translate and disseminate to State or local health departments, and other appropriate national regional, and local public health agencies and organizations; (4) reasonableness of the proposed budget in relation to the work proposed.

Match

Match: none required (federal program listing). This program has MOE requirements, see funding agency for further details.

This program on SAM.gov

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Source: Federal grants from Grants.gov · the official federal record. Last checked by GrantMe Oct 11, 2026.

Reference numbers: official notice number CDC-RFA-DD-26-0222 · program number 93.073