Public charity · New York, NY (gives in Tennessee from out of state)
Huntington's Disease Society
Its tax filing doesn't say how to apply. Check its website or call before sending anything.
Key facts
- Grants in Tennessee
- 3 totaling $80,000 · 1 in Hamilton County
- Typical grant
- $17,500 to $45,000 (the middle half of its Tennessee grants over $5,000, the only ones its filing lists)
- A realistic first ask
- About $17,500, its middle Tennessee grant. First-time winners usually get less than repeat ones.
- Where it gives
- Knox County, Hamilton County, Davidson County · plus 59 grants outside Tennessee
- Buildings & equipment
- None of its Tennessee grants in this filing were for buildings or equipment
- Funds new groups?
- Rarely: every Tennessee group it funded in 2025 had also been funded in 2024. Build a relationship before asking.
- Total giving that year
- $2.2 million
Giving by year
| Tax year | Total grants paid | To Tennessee | Tennessee grants |
|---|---|---|---|
| 2025 | $2.2M | $80K | 3 |
| 2024 | $3.2M | $74K | 3 |
All grants paid To Tennessee
How to apply
Public charities don't report how to apply on their IRS return. Check its website for open grant rounds, or search GrantMe for its programs.
Board and officers
Does your board know anyone here?
Checked in your browser only. The names are kept on this device for other foundation pages and are never sent to GrantMe.
- Jenne Coler-DarkChair
- Angela AllenChair elect
- Teresa SrajerPast chair
- Jay HughesSecretary
- Christopher DecesarisTreasurer
- Jeffrey BrownTrustee
- Mark CoeTrustee
- Erin Furr-Stimming MdTrustee
- Beth HoffmanTrustee
- Jonathan Klein EsqTrustee
- Jaime Hatcher-Martin MdTrustee
- Mara SifryTrustee
- Amber Southwell PhdTrustee
- Dominique ThomasTrustee
- Amy GrayChief executive officer
- Rosemary ColuccioChief operations off (thru 6/13/25)
- Arik JohnsonChief mission officer
- Deborah BoydRegional development director
- Rebecca ChanController
- Mynelly Perez-OrellanaDirector, marketing & communications
- Jessica MarsolekAssistant director, mission programs
- Melinda JensenRegional development off, ne region
As listed in its 2025 IRS filing. Many foundations decide through their board, so a personal connection often matters more than a perfect application.
What it funds most often
- Community services (3 grants)
Tennessee organizations it funded
Hamilton County grants are listed first, then the largest. Past winners are good people to ask what the foundation looks for. Select a group to see who else funds it.
| Past winner | Where | Purpose | Amount |
|---|---|---|---|
| Erlanger Health System | Chattanooga, Hamilton County | Community services | $18K |
| Vanderbilt University Medical Center | Nashville, Davidson County | Community services | $45K |
| Cole Neuroscience Clinic | Knoxville, Knox County | Community services | $18K |
Foundation website All its IRS filings (ProPublica) Sign in to save