Public charity · New York, NY (gives in Tennessee from out of state)
Huntington's Disease Society
Key facts
- Grants in Tennessee
- 3 totaling $80K
- Typical grant
- $18K to $45K (middle half of its Tennessee grants)
- A realistic first ask
- About $18K, its median Tennessee grant. New grantees usually get less than long-time ones.
- Where it gives
- Knox County, Hamilton County, Davidson County · plus 59 grants outside Tennessee
- Buildings & equipment
- None of its Tennessee grants in this filing were for buildings or equipment
- Funds new groups?
- Rarely: every Tennessee group it funded in 2025 had also been funded in 2024. Build a relationship before asking.
- Total giving that year
- $2.2M
Giving by year
| Tax year | Total grants paid | To Tennessee | Tennessee grants |
|---|---|---|---|
| 2025 | $2.2M | $80K | 3 |
| 2024 | $3.2M | $74K | 3 |
How to apply
Public charities don't report how to apply on their IRS return. Check its website for open grant rounds, or search GrantMe for its programs.
Board and officers
Does your board know anyone here?
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- Jenne Coler-DarkChair
- Angela AllenChair elect
- Teresa SrajerPast chair
- Jay HughesSecretary
- Christopher DecesarisTreasurer
- Jeffrey BrownTrustee
- Mark CoeTrustee
- Erin Furr-Stimming MdTrustee
- Beth HoffmanTrustee
- Jonathan Klein EsqTrustee
- Jaime Hatcher-Martin MdTrustee
- Mara SifryTrustee
- Amber Southwell PhdTrustee
- Dominique ThomasTrustee
- Amy GrayChief executive officer
- Rosemary ColuccioChief operations off (thru 6/13/25)
- Arik JohnsonChief mission officer
- Deborah BoydRegional development director
- Rebecca ChanController
- Mynelly Perez-OrellanaDirector, marketing & communications
- Jessica MarsolekAssistant director, mission programs
- Melinda JensenRegional development off, ne region
As listed in its 2025 IRS filing. Many foundations decide through their board, so a personal connection often matters more than a perfect application.
What it funds most often
- Community services
Tennessee organizations it funded
Largest first. Groups it already funds are good people to ask what the foundation looks for. Select a group to see who else funds it.
| Recipient | Where | Purpose | Amount |
|---|---|---|---|
| Vanderbilt University Medical Center | Nashville, Davidson County | Community services | $45K |
| Cole Neuroscience Clinic | Knoxville, Knox County | Community services | $18K |
| Erlanger Health System | Chattanooga, Hamilton County | Community services | $18K |
Foundation website All its IRS filings (ProPublica) Sign in to save