Centers for Disease Control - NCBDDD · Department of Health and Human Services
Long-term health outcomes of people living with spina bifida
Key facts
- Deadline
- Due Oct 26, 2026 · 20 days left
- Award size
- $100K – $300K
- Total available
- $3M · about 19 awards
- Cost share / match
- Not required
- Who can apply
- State government, City or town government, Private college or university, Small business, County government, Nonprofit with 501(c)(3), School district, Special district (utility, fire, etc.), Nonprofit without 501(c)(3), Tribal government, Larger business, Public college or university
- Where
- Anywhere in the U.S., including Tennessee
Before you apply: federal grants require an active SAM.gov registration (Unique Entity ID) and a Grants.gov account. The deadline is in 20 days. If your registration isn't already active, it may not be ready in time, so check it today. Grant-ready checklist
How this fits you
- Available in Tennessee (nationwide program)
- No cost share required
Tell us who you are to see whether you're eligible.
Read the official notice View on Grants.gov Add deadline to my calendar
About this grant
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
About the program (93.073)
Birth Defects and Developmental Disabilities - Prevention and Surveillance
How applications are judged
In general, applications are reviewed on the basis of scientific/technical merit, with attention given to such matters as: (1) The degree to which the applicant satisfies the essential requirements and possesses other desired characteristics, such as depth, breadth, and merit of the overall application relative to the types of projects proposed; (2) clarity of purpose and overall qualifications, adequacy and appropriateness of personnel to accomplish proposed prevention research projects and demonstration projects, and the nation's health priorities and needs; (3) ability to generalize, translate and disseminate to State or local health departments, and other appropriate national regional, and local public health agencies and organizations; (4) reasonableness of the proposed budget in relation to the work proposed.
Matching requirements
This program has no statutory formula.
Matching requirements are not applicable to this assistance listing.
This program has MOE requirements, see funding agency for further details. MOE requirements are not applicable to this assistance listing.
Examples of funded projects
Not Applicable.